From petrapez
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The child was conceived through in vitro fertilization, the embryonic cells have previously been selected so that they do not contain the beta-thalassemia-hereditary disease of the family, were born with the other family members and that the cell donation with the blood of an older brother is acceptable. Regardless of societal discussions of birth as organ donors for other people is the right to self-determination over his own body in this particular case Umut
- so the child was called - refused.
him as a child is removed from the blood, it can not defend themselves because it will not understand this operation and not to his dependence and trust in adults - is the situation - the parents. It is expected that the plan by the doctors of this intervention in this period, for eighteen years is to wait until the age of majority in this case probably illusory. Perhaps it is planned to transplant stem cells of the spinal cord.
The legal age to
Umut
the possible white permanent donation also can not escape because of the moral pressure for this undertaking is far too large. In the best case, a sense of responsibility to set the need. At beta-thalassemia
sufferers are life-long blood transfusion dependent and suffer the side effects. With an average transfusion requirement of 200 ml / kg body weight / year to an approximately 30-kg patient each year are fed about 6 grams of iron. The resulting increase in iron poisoning of the body and cause serious organ damage, in terms of heart, liver and pancreas.
No one can predict, however, the emotional stress when
Umut
should ever know that its therapeutic as by parents and doctors object being calculated in this way came about. The motivation of parents to understand that their seriously ill children with a help match "designed", readily available blood donors do, they are also close to her heart as each of their children - but not in regard to the welfare and the reaction of their youngest family member, which can not be predictable. Medical progress can not be used to guide the conception and birth of people by careful selection of its properties in the roads. In this case, it is "only" the taking of blood, which make every day, thousands of people who are volunteers. It will cease insidious ethical boundaries.
The next step is finally selected babies born to predetermined Destiny as organ donors for kidney transplants is - where is a problem for society, one has two kidneys and was born explicitly to cede a right to the receiver and remains alive. Those responsible will ensure that this need not be specified as Organauschlachten but should receive social acceptance.
establish ethics committees to monitor and control of medically feasible is meaningless, since individual members can not decide without prejudice. Too large, the influences of the biomedical industrial complex with his rat tail at research institutions and dependent reviewers. This is not a question of "morality", which is always a question of definition of the observer-dependent. The conception and birth of a person may not have general selection criteria for a particular purpose and subject to be classified as such and to reject human cloning or the destruction of "worthless life" in the hospitals of the Third Reich.
Source: http://derstandard.at/1296696684904/Bioethikgesetz-Geboren-um-Geschwister-zu-retten
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